About the SC Support Group

The Sickle Cell Foundation Support Group, Inc. was established in 1997.  Our mission is dedicated to engage with our global community in promoting Sickle Cell education to those afflicted with the disease and their care givers.  Our vision is to be committed to total wellness through nutrition and supplementation for preventive health and management of Sickle Cell Disease and other hemoglobin disorders. 

 

The Support Group takes heed to the scripture "in all your getting, GET UNDERSTANDING"  in your approach to coping and controlling the symptoms of Sickle Cell Disease.  Staying healthy is critical for all person, especially anyone with Sickle Cell Disease.  Eating well, getting enough rest, protecting yourself from infections, choosing the right foods and avoiding other foods and the way we cook our foods are ways to maintain your health and prevent crises and other complications.  It is imperative to find ways to control and cope with pain.  Different techniques work for different people; as well as different drugs and treatments works differently; and different nutritional therapy.  We believe it is worth trying complimentary solutions in maintaining your health. We believe our education and knowledge can be a source of support along with prayer, family and friends.  

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The Support Group strives to increase the awareness of Sickle Cell Disease, and the needs of patients and their immediate family members.  The Support Group addresses the psychosocial issues in coping with Sickle Cell Disease.  The Support Group strives to improve the quality of life for those suffering with the
disease.

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The Support Group helps to educate patients of the current medical treatments, discuss alternative health care solutions, prepare patients for the transition stage from pediatric care to adult care, and encourage health maintenance.  

 

The Support Group offers family support, pain management, nutritional management as well as offering special seminars and lectures for speakers to present information on various health issues
involving Sickle Cell Disease and life coping issues.  Our nutritional management, knowledge and educational materials are back by sound nutritional scientific research and up-to-date
references.

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The Support Group members consist of individuals living with Sickle Cell Disease, family, friends, and supporters.

 

The Support Group offers great networking opportunities to learn from and share experiences with one another.  Although we live with challenges and complications from Sickle Cell Disease, our focus is offering SOLUTIONS, planning for RESTORATION, and promoting ENCOURAGEMENT and SUFFICIENCY.  If you have
said "you don't want to hear sad stories or crying about the condition" or "complaints", so have we and that's why we want to support you, one another and assist patients to help them take control!